Non-profit · Awareness & Support

Fighting for every
adrenal warrior.

Addison's Disease

A rare disease,
an everyday battle.

Addison's Disease — or primary adrenal insufficiency — occurs when the adrenal glands fail to produce adequate levels of cortisol and aldosterone. These hormones regulate metabolism, blood pressure, immune function, and the body's response to stress.

In most cases the cause is autoimmune: the immune system mistakenly attacks and destroys adrenal tissue. Diagnosis is often delayed by years because the symptoms — fatigue, weight loss, low blood pressure, skin darkening — overlap with dozens of other conditions.

There is no cure. Those diagnosed manage the disease through daily hormone replacement therapy and constant vigilance against adrenal crisis, a life-threatening emergency that can be triggered by illness, injury, or stress.

1 in 100K
People affected worldwide
4–5 yrs
Average time to diagnosis
80%
Autoimmune in origin
Lifelong
Daily treatment required
Our Mission

We exist to ensure
no one fights alone.

01

Raise Awareness

We educate the public, healthcare providers, and communities so that fewer people go years without a correct diagnosis. Recognition saves lives.

02

Support Patients & Families

We connect patients with resources, community, and one another — reducing the isolation that so often comes with a rare disease diagnosis.

03

Fund Research

Every dollar donated advances research toward better treatments, faster diagnostics, and one day — a cure.

Events

Where we gather
and give.

Apr
12
2025

Addison's Awareness Walk — Chicago

Grant Park · Chicago, IL · 8:00 AM
Join us for our annual awareness walk through Grant Park. All are welcome — patients, families, and allies. Registration is free.
Organization
Apr
19
2025

5K Run for the Adrenal Warriors

Riverside Park · New York, NY · 7:30 AM
Lace up and run with us. Every registration fee goes directly to patient support programs and research funding.
Fundraiser
May
03
2025

Patient & Family Support Summit

Virtual · Zoom · 11:00 AM – 2:00 PM CT
A half-day online gathering featuring expert speakers, peer panels, and open Q&A for patients and caregivers navigating daily life with Addison's.
Organization
Jun
07
2025

Gala for the Adrenal Foundation

The Palmer House · Chicago, IL · 6:30 PM
An evening of dinner, live music, and an auction to raise funds for Addison's research. Black tie optional. Tickets available online.
Fundraiser
Sep
20
2025

Annual Medical Advisory Board Meeting

Northwestern Hospital · Chicago, IL · 9:00 AM
Our annual gathering with medical advisors, researchers, and organization leadership to review progress and set priorities for the year ahead.
Organization
Oct
11
2025

Charity Cycling Challenge

Lake Shore Drive · Chicago, IL · 6:00 AM
A 50-mile charity ride along the lakefront. Riders collect pledges from friends and family, with all proceeds benefiting Active4Addisons programs.
Fundraiser